I had what I call a "stroke day" today. I'm past the stage where I do silly things (mostly!) and I don't lose days to fatigue, in the way that some survivors do - I tend to be more short, sharp shocks - but I just had one of those days where things seemed to take longer.
My first thing happened this morning. An indirect, rather than direct, effect of the stroke. I've been meaning to get a haircut recently, so went into Salisbury. When I used to drive, it was fifteen minutes each way, unless you got caught in traffic. Coupled with the haircut, about an hour? But, as I'm restricted to the bus, it was a 3-hour round trip. I mean, I'm grateful that I'm able to go anywhere after the stroke, but it's not quick. It was rainy today, so I got soaked to boot.
The other two things I'll mention are a direct result of the stroke. It stemmed from my decision to wash my bedding this morning. Along with the bedding, some white interview shirts were lying on the bed, I hadn't put them away last time. They were a bit creased so I put them in with the bedding. By lunchtime, the laundry was complete - I was determined to avoid my previous mistake so was determined to iron the shirts, and hang them up in the wardrobe.
Ironing a shirt. Two minutes, right? Then imagine ironing it with one hand. Every time I adjusted the shirt, I had to re-adjust it to try and make sure I didn't iron creases into it, before I actually used the iron. A good ten or fifteen minutes, plus my back was killing at the end of it just for having been standing in a not-very-comfortable position. So I still have two of the three shirts still to do!
Lastly, there was putting the bedding back on. I've learned a few tricks by now, so I can manage pillows ok - as long as I use my teeth. The duvet cover is always a struggle but I use single bedding these days, so I know I'm able to do it (a double duvet would defeat me). But it just takes that much longer.
The bed itself is still a double, so the base sheet is also a double, and therefore tricky to get on. I find one of the corners, but it fights back as I try to tuck it under the mattress. It pops out, I lose it, and have to start the process again. This time I had the bright idea, instead of tucking the sheet corner under the mattress, to hook it over the bedpost instead. That seemed to make things easier. When three of the four corners were in place, the fourth was easy to identify and to tuck under the mattress, and the other three followed suit. Not a bad job. But it still took a good half hour, a lot longer than when I was healthy.
I'm sure that each time I do these tasks I get a little bit quicker. I remember a couple of years ago, being in tears because I couldn't get this double duvet cover onto the duvet and then onto the bed. (It was summer and I even tried to enlist the help of our rotary washing line,taking everything out into the garden, still to no avail!) But I wonder if I'll ever get to the point where they don't take any longer than they used to?
BEFORE YOU START: Please note that although I currently volunteer for both the Stroke Association and Age UK, the views expressed in this blog are strictly my own. I am not a spokesperson for either (or, indeed, for any) organisation, and I accept complete responsibility for the views expressed herein. As indicated by the domain name, I am based in the UK and the blog therefore has a UK bias - I've tried to use the Glossary to explain any ambiguous terms, but if you think there is anything I've missed, please message me.