BEFORE YOU START: Please note that although I currently volunteer for both the Stroke Association and Age UK, the views expressed in this blog are strictly my own. I am not a spokesperson for either (or, indeed, for any) organisation. I am based in the UK and the blog therefore has a UK bias - I've tried to use the Glossary to explain any terms which might be ambiguous, but if you think there is anything I've missed, please message me. Lastly, you'll find typos here, although I do my best to correct them. There are reasons for this, which you'll discover as you read.

Monday, 19 February 2018


A friend of mine is the chairperson of a small charity. The last time I saw her was a few months before my stroke, when we had a good catch-up over a long lunch. I remember her saying that as a result of her being involved in this charity she'd been to a couple of the queen's garden parties. I also remember (or think I remember) that we both claimed to be republicans, so I didn't see the appeal. She said it was to raise awareness of her charity. Fair enough for her, but that wouldn't cut any ice with me.

It did make me think, since I myself have had a stroke, and I myself am now involved in charity work, whether this changes anything. It doesn't, for me. Plus, I'm fortunate enough that if I was ever asked to do anything I didn't want to do, I could pass the buck to someone else and the charity would still have its awareness raised.

I'm also in two minds about a blog I've started following, about a woman with early-onset dementia. She's just written a book and is currently, it seems, working very hard at promoting it. TV shows here and there, apparently.

Well, many of us could relate to some life-changing event, including me. So, I wonder whether I could write a book? I mean, at the end of the day, it'd just be a book about me. For most of us, I suppose that is our favourite subject! I've written over a hundred blog posts in about the last year, it doesn't worry me one bit that I am probably the only person to read them - as much as anything it is for my own rationale - but whether a book would be of interest to anyone else is a different matter.

I suppose you'd have to take a publisher's word that you had a "story". And certainly writing the book would not be a problem - there's plenty of material. Or the presumed financial windfall that it means. But this woman (in her blog) is writing about a seemingly endless round of publicity, which turns me right off. But at the same time, of course, she is very successfully raising awareness. You'd kind of feel obliged to seize that particular opportunity. And presumably that would be quite a difficult task to delegate?

But certainly from my personal perspective, I'm not particularly interested in reading about the time when she met such-and-such a superstar actor on such-and-such a TV show. I'm sure that these are all nice people, but.....

There's lots of "buts" in this post - I did say I was in two minds!

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