Today I found out about the charity Disability Rights UK, liked the look of them, and joined. I was looking at a post on an Internet forum a few days ago, and the author was saying that she'd been discriminated against in her workplace, purely on the grounds that she had once had a stroke. It made me think.....what exactly were their rights?
I thought on about it this morning and asked the Stroke Association if they knew, and ironically they pointed me toward Disability Rights UK. I say ironic, because these people seem more relevant than the Stroke Association themselves, although I suppose that the two do have a different purpose.
But I do find a lot of the stroke stuff has politics at it's heart, and I have found the Stroke Association to be very wishy-washy in that area. There seems to be an overwhelming intention by the trustees of the charity not to "rock the boat", and for that reason my support for them has to be qualified. I think you need to feel that you can criticise the government of the day, if they're making poor decisions about strokes. It's a big reason why I've avoided conferences arranged by the Stroke Association. I mean, you don't have to be militant, but you should be able to make your point. How much of my own treatment has actually been driven by economics over clinical need?
BEFORE YOU START: Please note that although I currently volunteer for both the Stroke Association and Age UK, the views expressed in this blog are strictly my own. I am not a spokesperson for either (or, indeed, for any) organisation, and I accept complete responsibility for the views expressed herein. I've tried to use the Glossary to explain any ambiguous terms, but if you think there is anything I've missed, please message me.